BioNews Services’ Scleroderma News team recently wrapped up comprehensive, on-site news coverage of the 4th Systemic Sclerosis World Congress, held this year in Lisbon, Portugal From February 18-20. The event, which drew close to one-thousand researchers, physicians, and stakeholders in the advancement of treatments for Scleroderma, was covered for the first time by BioNews, publishing a series of feature-length news articles, exclusive video interviews, and live, real-time coverage via social media including professional photography and live-streaming.
The Scleroderma News team was comprised of chief correspondent Dr. Ana de Barros, who reported on the various presentations and sessions; Social Media Director Isaura Santos, who managed all facets of coverage of the event on-site, including social media, photography, and video; and Social Media Manager Marta Ribeiro, who provided the visual media for the coverage. Scleroderma News Managing Editor Patricia Silva and Social Media Manager Andreia Peixoto. The team’s three-day coverage of the event was hailed as a success by Conference planners, attendees, and online followers.
Throughout the course of the three-day event, Scleroderma News published over twenty news stories, interviews, and other content pieces related to #SSc16. Some of the articles can be read here:
- After 10 Years with Systemic Sclerosis, What Can I Expect?According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. In this video from FESCA, taken at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk about “Predicting the future with systemic sclerosis” and […]
- Living with Scleroderma: My Sexual Relations, Pregnancy and SexualityIn this FESCA video from the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, watch the following presentations: Prof. A. Tincani: Improving sexuality Prof. V. Steen: Is it safe to get pregnant? C. Leite: My new baby G. Verzi: Developing sexual confidence R. Kanters: Enjoying your relationship Learn more about scleroderma here: http:/ […]
- Meet the Professor: Answers to Your QuestionsIn this video by FESCA, listen to Prof. M. Mayes and Prof. P. Carreira answer questions from the audience at the Patient Congress at the 4th Systemic Sclerosis World Congress 2016, in Lisbon. Learn more about scleroderma here: http://bit.ly/learnscleroderma The post Meet the Professor: Answers to Your Questions appeared first on Scleroderma News.
- How Can I Manage Systemic Sclerosis Myself?In this FESCA video from the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, watch the following presentations: Dr. L. Kwakkenbos (NL): Coping with the everyday challenges of scleroderma V. Delisle: Do support groups help? Dr. J. Lee: Painful symptoms that cannot be measured Learn more about Scleroderma here: http://bit.ly/learnscler […]
- What Will Cure the Pain of Digital Ulcers and CalcinosisIn this FESCA video, watch presentations at the Patient Congress of the 4th Systemic Sclerosis World Congress in Lisbon about digital ulcers and calcinosis. Learn more about scleroderma here: http://bit.ly/learnscleroderma The post What Will Cure the Pain of Digital Ulcers and Calcinosis appeared first on Scleroderma News.
- Spotlight on the Ssc patient: Alice Martins Correia; Geneva, SwitzerlandSpotlight on the Ssc patient: Maria Alice Martins Correia; Geneva, Switzerland For my blog this week, I would like to introduce Alice to you. Alice is without doubt, one of the bravest pioneering patients of the global Ssc community, and whose story personalises how devastating and aggressive this diagnosis can be, and, […] The post Spotlight on the Ss […]
- After 10 Years with Systemic Sclerosis, What Can I Expect?In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk about “Predicting the future with systemic sclerosis” and K. Fligelstone’s presentation about “A long life with systemic sclerosis”. Learn more about scleroderma here: http://bit.ly/learnscleroderma The post After 10 Years with Sy […]
- Scleroderma Groups Launch Scholarly Journal with SSc and Related Disease FocusThe European Scleroderma Trials and Research group (EUSTAR) and the World Scleroderma Foundation recently announced the launch of a scholarly journal dedicated to coverage of research and clinical data regarding systemic sclerosis (SSc) and related autoimmune and fibrotic diseases, called the Journal of Scleroderma and Related Disorders (JSRD). While underst […]
- What Do We Know About Scleroderma Now?In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to the “What do we know about scleroderma now?” presentation by Prof. C. Denton. Watch Prof. C. Denton exclusive interview with Scleroderma News here: http://bit.ly/20H6oJ0 Learn more about scleroderma here: http://bit.ly/learnscleroderma The […]
- What Will Help Me Breathe Easily? Is My Heart Involved?In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to: Prof. O. Distler : “Understanding lung problems” Dr. A. Cordiero and Dr. M. J. Loureiro: “HAP and the heart” A. Roennow: “Struggles with breathing” Learn more about scleroderma here: http://bit.ly/learnscleroderma The post What Will Help […]
In addition, the website’s social team established Scleroderma News as the leading social media reporter on both Twitter and Facebook. for the official #SSc16 event hashtag, Scleroderma News dominated in both mentions and number of tweets:
The use of social media allowed the Scleroderma News teams to offer real-time coverage of the event so that patients, physicians, and researchers could follow along and pick up the highlights from the various scientific sessions, presentations, and addresses.
Reporting & Content with the Patient in Mind
Scleroderma News published and promoted a wide range of dynamic, engaging news content that gave Scleroderma patients a unique insight into the latest developments in treating SSc. At #SSc16, our editorial team produced several different video formats that helped to bring the excitement and insight of the conference directly to the patient population.
Dr. de Barros connected with Dr. Christopher Denton of Bayer Pharmaceuticals after his presentation to discuss Adempas and how recent clinical trials could offer benefits to the patient population:
The Scleroderma News multimedia team also used video to capture the scope of the conference itself, such as with this innovative video made for social media that highlighted the large number of poster sessions:
— Scleroderma News (@SclerodermaNews) February 19, 2016
A tremendous amount of time, money, and resources are invested into planning and executing successful biotech conferences. The objectives may vary slightly from event to event, but as a rule, the overarching goal is to bring the research, clinical, and patient groups together to share what they’ve learned, what they’re working on, and what still needs to be accomplished. Through the advent of the digital age, conferences such as these need not be limited to those who can attend in person. While following biotech conferences online can never replace actual attendance of the event, online coverage gives patients who cannot attend intimate access into the presentations and insights.
The health media rarely covers these events, as most health centric websites are not dedicated to specific diseases; while they may offer a wide range of content about diseases, such as symptoms, diagnosis, treatment, and self-help, there is not enough of a commitment to any one disease to make such an investment as to attend and cover annual disease specific conferences.
At BioNews Services, our content model is completely different: we build niche, disease-specific websites and social media assets that lead to building patient communities online. As more and more patients seek to take control of their own disease management and learn everything they can about the diseases and conditions that they suffer from, the media can no longer simply focus on educating physicians and engaging researchers. The new approach is a “bottom-up” one, where patients, armed with the latest knowledge, can be better engaged in treatment decisions with their healthcare team.
For conferences as well as corporate sponsors looking for increased visibility for their brand, product, or research, BioNews offers conference news services that can deliver the rich, valuable conference experience to not only researchers and physicians who could not attend, but patients as well. The goodwill and engagement created from this coverage is integral to increasing clinical trial participation and patient awareness — two areas of research and treatment that are sorely lacking.
Click here to learn more about BioNews’ conference news services.
Watch a Video About our Coverage Here:
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